A dispatch from the front lines - revisited
Note from Tom 1/28/22: On June 27, 2020, I published two
emails that had been sent to me by Jude Gamel; I reproduce the post in full
below. Jude remains a reader of this blog, and a recent conversation with him
made me go back and read this post – and realize how powerful and relevant it
is. I think you’ll agree.
Note from Tom 1/27/20: Jude Gamel, a recently retired critical
care nurse who lives in Kentucky, started corresponding with me a few weeks ago
about this blog. We hadn’t discussed his own experiences (and those of his
former colleagues, whom he keeps in touch with regularly) treating Covid-19
patients previously. But yesterday, he was inspired by that morning’s post,
which focused entirely on deaths from Covid-19, to describe, in two emails,
what “successful” outcomes are – i.e. when the patient survives. In many cases,
the patient might well wonder whether the physical, emotional and financial
toll on them were actually better than dying. And there’s also a huge physical
and emotional toll on the health care workers. His account is gripping.
Jude’s first email
I just finished reading you post for today. I would like to add or at least to
comment on something that too often gets lost or goes missing in conversations
about Covid-19 and I think it is particularly relevant to what we see happening
now: there are some outcomes that are almost as bad as dying and Covid-19 is a
perfect example. Let me see if I can articulate this properly in order to make this
clear.
Take for instance ICU beds. Most patients admitted to an ICU are admitted
because they require specialized care and monitoring that cannot be done on
another unit or floor. It is usually just to get a patient through a critical
point. A clear example of this is a patient recovering from Open Heart Surgery.
They generally spend 24-48 hours in a Cardiovascular Intensive Care Unit and
are then discharged to a Step-Down Unit and then home or to a re-hab facility
for recovery (roughly 7-10 days). A patient who has a Myocardial Infarction
(Heart Attack) goes to a Catheterization Lab and gets stented and spends,
again, 24 hours or so in an ICU (if even that). Now more complicated situations
like Sepsis, Diabetic Ketoacidosis, COPD Exacerbation or a bevy of other
diseases both chronic and acute result in longer stays but rarely more than 5 -
7 days. Now remember (I know this should be self evident) once a patient is
admitted to an ICU bed you cannot admit another patient to that bed until that
patient is discharged or dies (a celestial discharge).
Critically ill Covid-19 patients occupy ICU beds for WEEKS and require
incredible resources to keep them alive. This is a drag on the system and the
morale of physicians, nurses, respiratory therapists and ancillary staff. The
care these patients require and the steps healthcare workers must take to
protect themselves are incomprehensible to the average person. If you have not
done it or experienced it you just do not know. Once these patients are finally
well enough to be discharged from the ICU they spend weeks on Step-Down Units
or Floors and then spend even more time in Re-hab. The costs incurred by their
families are insurmountable; only the very richest in our society can manage
even with gold-plated health insurance policies! This is why I say ‘worse than
death.’ Many of those we ’save’ would have foregone the saving if they knew
what it would do to their family’s financial future and after all the suffering
they endure. It is sad. And Trump and his Republican allies want to do away
with the ACA in a Pandemic! You cannot make this stuff up!
Well,
Tom, I could go on but the point I am trying to make is that we need to make
distinctions about this disease that talking about Infection and Mortality just
do not get at. Covid-19 is a devastating disease and you do not want to become
infected. Yes, most cases are mild (thankfully) and some people may not even
know they were infected. But new research is now indicating that even
Asymptomatic people may have unrecognized sequelae from the disease whose after
effects may not be known for years.
Jude’s second email
Let
me give you more of a flavor of what I am talking about. Critically ill
Covid-19 patients require 24/7 one on one nursing care. If they are on a
ventilator they require frequent ’suctioning’ of their breathing tube, if their
kidneys have shut down they are on bedside dialysis (CRRT…Continuous Renal
Replacement Therapy), they require turning side to side every 2 hours minimum
to prevent skin breakdown, they are on multiple vasoactive IV medications
running through continuous pumps, they have a feeding tube threaded through
their nose into their small bowel and are receiving nutrition via the tube,
they have large bore IV lines in their neck, the feedings lead to diarrhea so
you are constantly dealing with loose stool until you put a containment device
in their rectum…it goes on and on, so I am sure you get the picture. Now,
remember in order for the nurse managing this patient to protect themselves
they are wearing an N-95 mask or a helmet like CAPR device, they are wearing a
plastic gown, they have a face shield on, they have booties on their shoes, the
rooms are hot, they cannot leave the room sometimes for hours and when they do
they are soaked in sweat head to toe and they do this for 12-14 hours day in
and day out.
Now,
if this patient is on ECMO (Extracorporeal Membrane Oxygenation) [think of it
as ‘bedside’ cardiopulmonary bypass], then they require two on one nursing
care!
Oh,
and I forgot to mention, the patient is a 5 ft 5 in woman who weighs 275 lbs or
a 6 ft 5 in man who weighs 350 lbs. Their girth extends side to side in the bed
and requires at least two sometimes 3 or 4 people to turn them…and, God forbid
you are ‘proning’ the patient; that might require 6 or 7 people.
Now,
imagine doing that for the foreseeable future. It is grinding, overwhelming
work that will take you to your knees. That is what is coming to the nurses at
hospitals in FL, TX, AZ.
For
these patients, well in order to keep them comfortable some of them require
continuous Neuromuscular Blockade (chemical paralysis), continuous pain and
sedation medications for weeks. Some of them do not wake up for days when you
try to wean them from the ventilator. The neuromuscular blockade leads to
something called ‘critical illness polyneuropathy’ which means they initially
have little motor movement or strength and take a long time to just sit up much
less raise their arms to feed themselves or walk.
And
then you have the bills…
So,
yes, I do believe there are some things worse than dying. When we put all of
this in that box that says ‘Infected’ or ‘Recovered’ or ‘Died’ this is the type
of thing you are talking about.
Covid-19
is a horrid disease and you want to do everything you can to avoid it because
you do not know if you have that chink in armor that lets it take you
down.
New
cases jumped from 41,000 to 49,000 yesterday. Given that there were four days
in mid-June during which new cases were under 25,000, this is a stunning
increase. Unfortunately, this probably isn’t the end of it. My biggest question
is when and how much it will increase the deaths numbers. Yesterday, the 7-day
average of new deaths jumped to 5%, and that didn’t change today. But if we
have more deaths numbers soon that come anywhere near 2,500 (yesterday’s
level), then it’s inevitable deaths will increase at an even greater rate soon.
This is something to watch closely.
The numbers
These numbers are updated every day, based on reported US
Covid-19 deaths the day before (taken from the Worldometers.info site, where
I’ve been getting my numbers all along). No other variables go into the
projected numbers – they are all projections based on yesterday’s 7-day rate of
increase in total Covid-19 deaths, which was 5%.
Note that the “accuracy” of the projected numbers
diminishes greatly after 3-4 weeks. This is because, up until 3-4 weeks, deaths
could in theory be predicted very accurately, if one knew the real number of
cases. In other words, the people who are going to die in the next 3-4 weeks of
Covid-19 are already sick with the disease, even though they may not know it
yet. But this means that the trend in deaths should be some indicator of the
level of infection 3-4 weeks previous.
However, once we get beyond 3-4 weeks, deaths become more
and more dependent on policies and practices that are put in place – or
removed, as is more the case nowadays - after today (as well as other factors
like the widespread availability of an effective treatment, if not a real
“cure”). Yet I still think there’s value in just trending out the current rate
of increase in deaths, since it gives some indication of what will happen in
the near term if there are no significant intervening changes.
Week ending |
Deaths reported during week/month |
Avg. deaths per day during week/month |
Deaths as percentage of previous month’s |
March
7 |
18 |
3 |
|
March
14 |
38 |
5 |
|
March
21 |
244 |
35 |
|
March
28 |
1,928 |
275 |
|
Month of March |
4,058 |
131 |
|
April
4 |
6,225 |
889 |
|
April
11 |
12,126 |
1,732 |
|
April
18 |
18,434 |
2,633 |
|
April
25 |
15,251 |
2,179 |
|
Month of April |
59,812 |
1,994 |
1,474% |
May
2 |
13,183 |
1,883 |
|
May
9 |
12,592 |
1,799 |
|
May
16 |
10,073 |
1,439 |
|
May
23 |
8,570 |
1,224 |
|
May
30 |
6,874 |
982 |
|
Month of May |
42,327 |
1,365 |
71% |
June
6 |
6,544 |
935 |
|
June
13 |
5,427 |
775 |
|
June
20 |
4,457 |
637 |
|
June
27 |
6,272 |
896 |
|
Month of June |
23,626 |
788 |
56% |
July
4 |
6,594 |
942 |
|
July
11 |
6,933 |
990 |
|
July
18 |
7,290 |
1,041 |
|
July
25 |
7,664 |
1.095 |
|
Month of July |
34,191 |
1,103 |
145% |
Total March – July |
164,015 |
Red = projected numbers
Total
US deaths as of yesterday: 127,649
Increase
in deaths since previous day: 864
Yesterday’s
7-day rate of increase in total deaths: 5% (This number is used to
project deaths in the table above; it was 5% yesterday. There is a 7-day cycle
in the reported deaths numbers, caused by lack of reporting over the weekends
from closed state offices. So this is the only reliable indicator of a trend in
deaths, not the three-day percent increase I used to focus on, and certainly
not the one-day percent increase, which mainly reflects where we are in the
7-day cycle).
II. Total reported cases
Total
US reported cases: 2,504,676
Increase
in reported cases since previous day: 49,010
Percent
increase in reported cases since yesterday: 2%
Percent
increase in reported cases since 7 days previous: 11%
III. Deaths as a percentage of closed cases so far in the
US:
Total
Recoveries in US as of yesterday: 1,068,768
Total
Deaths as of yesterday: 127,649
Deaths
so far as percentage of closed cases (=deaths + recoveries): 11% (vs.
11% yesterday)
For a discussion of what this number means – and why it’s so important – see this post.
I would love to hear any comments or questions you have
on this post. Drop me an email at tom@tomalrich.com
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